Validation of an abbreviated adherence measure in youth with type 1 diabetes (T1D)


Adherence to diabetes-related tasks is an important construct. The Diabetes Self-Management Profile is a validated, semi-structured interview assessing adherence in paediatric patients with Type 1 diabetes. We created and validated a brief questionnaire version of the Diabetes Self-Management Profile called the Diabetes Self-Management Questionnaire.


Young people with Type 1 diabetes, ages 9–15 years (n = 338) and their parents provided data from chart review, interview and questionnaires.


Diabetes Self-Management Questionnaire scores correlated significantly with Diabetes Self-Management Profile scores, HbA1c, blood glucose monitoring frequency and other measures associated with adherence and/or glycaemic control (P ? 0.01 for all). Young people and parent scores were correlated (r = 0.55, P < 0.0001). The Diabetes Self-Management Questionnaire demonstrated modest internal consistency (Cronbach’s ? = 0.59), adequate for a brief measure of multidimensional adherence. In addition, factor analysis confirmed one factor.


This brief adherence questionnaire demonstrated construct validity in young people 9–15 years old and their parents and may have utility in clinical and research settings.

AuthorsMarkowitz, Jessica T.; Volkening, Lisa K.; Laffel, Lori M.B.; Anderson, Barbara J.; Nansel, Tonja R.; Weissberg-Benchell, Jill; Wysocki, Tim
Therapeutic AreaEndocrinology
Service AreaReal-World Evidence
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